Questions for the P/SN people

[sheila]

This forum is open to non-subscribers.

Do you think it should be?
Would you post in here more if it weren't?
What would make you more likely to post in here?

[Jillsers]

Do you think it should be?
No, definitely not, because most of what would be posted is private, sensitive information about our kids. I would hate to have "strangers" reading about my struggles with both of my kids.

Would you post in here more if it weren't?
Probably, but only if other people start posting as well. It seems hard to get this group going.

What would make you more likely to post in here?
More people participating (and yes, I know that's a catch-22 :lol: ). I know that Wendy (Sparrowbug) is very good at drawing people into the SN&P group at OLU...maybe we need someone like that over here? :dunno:

[JustJen]

I didn't know there was one. I would be interested in one that focused on special needs for older kids. My oldest has possible Fragile X syndrome and some learning disabilities. A lot of ticks that I find odd.

I would love a forum to discuss similar issues with other's children.

[Jennie]

I am here too and would prefer this to be private.

Not posting much at the moment with Maggie's arrival any day but I am always up to posting, answering questions on both the preemie and SN sides, etc.

Jennie

[Mary]

I'm here too and would also prefer that this be private.

Mary

[WendyWoman]

Why would you want to exclude other people from participating in a forum that could emotionally benefit them?

I am a non subscriber. My son was two months early. The struggles you go through may seem private to you but every single parent who has had a preemie has had the same or close to the same thoughts and experiences you have had. When I was in the NICU every single day I thought I was the only person who thought their baby would get septic. I thought I was the only person who coached my baby to take more at each feeding so we could take him home sooner. It can be hard to keep it together but parents of P/SN's need support subscribers or not.

[Shanna]

I'm here and I'm okay with it being open to everyone. Preemie moms have a special bond that alot of mom's don't have, and its hard to find that support... I think it would be okay being open to the general public. How can we prevent/educate/support if we're not available? :dunno:

[Brandi]

Hmmmm....... I'm torn on this. In a way, it would be nice to have it open because we all need as much help as we can get and if we can share ideas, thoughts, and stories then we will be benefiting many others. BUT, I also would like to be able to share exactly what is going on with my daughter in a place I feel safe without having everyone read the information. I don't know. I guess I would lean more toward having it closed.

[Nadine]

Do you think it should be? No, I think it should be for subscribers only.
Would you post in here more if it weren't? I wasn't aware of it being a public forum. I only discovered that I belong in here now. I might end up deleting my posts if it stays open to non-subscribers.
What would make you more likely to post in here? If it were restricted. I would prefer this forum to be private since we share very private information here.

I think there might be a difference between parents of preemie and SN. I don;t think I'd oppose it being public if my kid were a preemie. Since he isn't... there is a lot of info I would NOT post here because I don't want anyone to have access to it.


Sheila - have you decided if this forum is for subscribers only or not?

[sheila]

This forum has now been closed to non-subscribers, as that seemed to be what the overwhelmong majority wanted.

I do think it is unfortunate.

[Nadine]

Sheila - maybe if the ones who have preemies don;t mind we could seperate this into 2 forums. And leave the one for the preemies open. Just an idea.

[Brandi]

Sheila - I understand your concern about keeping this private. It would be nice if it were open because then we could share our experiences with others. BUT, I like it private too. AND, there aren't a whole lot of people on here to really share that many experiences. We probably wouldn't be pulling people in here from google searches because we just don't have a lot of stuff going on here. I'm sure there are other boards that have TONS more information. So, in the end, I don't think others are really missing out on a whole lot here. Not that I don't appreciate this area of these boards. Anyway, just my 2 cents.

[Bonnie]

I have no strong feelings either way, but I do agree with Brandi... there are a lot of public boards out there for people, so while it might be nice for this forum to be more active, there is a Yahoo group for just about every "challenge" facing a child. It is kind of nice to have the privacy and intimacy of this board.