View Full Version : Anyone have multiple m/c's?
Sarah
August 25th, 2004, 09:50 AM
I am hoping to find some people to talk to that have gone thru multiple m/c's. We've had three in a row in the last 9 months. During our last pg they did a connective tissues test and found out that in addition to the PCOS and endo I have, I tested positive for cardiolipin antibodies. It is called antiphospholipid antibody syndrome. Aparently my blood clots too much not allowing the baby to stay implanted. All my m/c were early on, the latest was 6 1/2weeks. I am on asprin and was on progesterone. I just got af a week early so I stopped that. I just found out yesterday so I still don't know much about how they will treat this. I have a son already that is 1 1/2. We had him using IVF. My tubes were blocked and after a year of depo lupron they opened. But we still couldn't get pg. We were sucessful our first round of IVF and out of three embies we had one. I never had any bleeding or problems like that while pg. Riley was born the day after I was due but he was under 6 lbs.(not sure how since I gained 50!) But after reading some stuff online I see that this can be a side effect in addition to preeclampsia, preterm labor, etc. I am so scared. I really don't know if I can handle losing another baby. But DH and I want another one so badly. My problem for the last 6 years has been getting pg. Now I have been lucky enough to get pg but I can't hold the baby. I should be talking to my RE today to go over things. The nurse said they might send me to a specialist who deals with this. Maybe they can offer something to help. I am just so scared. The last few months have really been hard since I've had two in the last 3 months. I don't know if we were just really really lucky with Riley and things were ok or if I just got this. I don't know when something like this starts. I just want to cry and stay in bed. If there are any women out there with this please post your stories and info here. I really appreciate it. I hope there are some really good success stories out there. I could really use that now.
Sarah
Bev
August 26th, 2004, 07:42 AM
I stopped by to give you a big :hug99: I am so very sorry for all of your losses. I have not experienced anything like that, but I did have a complete molar pregnancy last year. A lot of the girls on my babycenter molar pregnancy board have had multiple m/c's. Some have had 2 and others up to 5; not including the mole. I hope you can find some support.
Sarah
August 26th, 2004, 08:01 AM
Thank you so much Beverly. I did get some good news yesterday. The RE's office called back and it turns out that once I got the + for the antibody thing they did a more indepth test. And it came out neg for all three components. So I had a false +. I don't know why they would tell me it was + before they got the results back from the more in depth test. It made me a wreck for nothing.
I am still spotting a little bit. I took a HPT yesterday and today and they are both +. Something isn't right though. I just O'd a week ago(and I O'd earlier than usual) So I shouldn't be able to get a + yet. Another thing is that I am spotting dark red blood. The other night I had terrible cramps and my cervix really hurt. That is just exactly what happened with my other three m/c. But today the spotting is much better. Still there but not as heavy. We're not getting excited about any of this yet. We aren't off to a good start. And with my past I will not be surprised if this doesn't end well. I want it to so badly but something in my gut says this isn't right. The nurse said she had never heard of being able to test this early. And she was shocked that I O'd so early too. I started my last m/c on the 9th of this month. Then I o'd on the 17/18 and tested + on the 25. I am scared that maybe I didn't pass everything from the m/c and my numbers are starting to raise again. (it was 4 last time they checked) I went in for blood yesterday and they'll have the results back later today.
Sarah
Shel
August 26th, 2004, 09:06 AM
Sarah :bighug:
We've talked a little, so you know some. The boys are from my previous marriage, and so when David and I got married, we were schocked to have so many problems. We had 2 miscarriages (one at 11 weeks, one at 6) They did some testing and found out that between my endometriosis and David having "abnormal sperm" (minus full tails that don't allow the sperm to fully penetrate and fertilize the egg) we would probably never be able to have children. Basically they told us to keep trying. It took almost 2 years of trying to get Riley to stick. We've since had 2 more miscarriages (one at 4-5 weeks and one at 8), and it was almost a year after miscarriage number 4 and we are pg again and have made it to almost 25 weeks. I actually went on birth control again after the last miscarriage for a few months just to take a break and let my body heal. It must have been what it needed. I completely understand where you are. It's so frustrating to have a body who can't do what countless others can do. We have been so blessed, but it still doesn't make it any easier :bighug:
Sarah
August 26th, 2004, 04:02 PM
Hi Shel. I am so happy that you have made it so far with no problems. i hope the remainder of your pregnancy continues the same and you'l have a sweet little one! I am terribly sorry you had to go thru so much first.
Well I just got the call from the Re's office. My HCG is 16 and my progesterone was 13.5. That was at only 7 days past O. My Re likes to see my progesterone above 15 so they are now having me take the prometrium twice a day. Hopefully it will work and things will be good. I will go in tomorrow at 9:45. They'll call me back later that afternoon to let me know what it is at. I know it at least increased this morning since yesterday since the line was darker. I hope that it will continue to get darker. I don't have anymore FRE tests so I'll use the 50 unit test and see if anything shows up. It might not since I shouldn't be quite at 50 but the FRE says it tests at 25 and I showed a good + at only 16. Actually I should wait on testing. I will be finding out that afternoon anyway. I should save the test for the weekend when I won't be having the blood tests. that will help to keep my mind at ease. So maybe we'll actually have a shot here. I am so glad that i tested this early even though I thought I'd never see anything. Maybe since we know so early the extra dose of progesterone will be what does the trick. I am still so scared. I'm actually shaking. I know that getting crazy like this won't help the baby so I am going to relax with some m&m's. With any luck Riley will go down for a nap.
Sarah
Bev
August 26th, 2004, 07:32 PM
I'm keeping my fingers crossed for you Sarah. :) Good luck.
Sarah
August 27th, 2004, 03:06 PM
Unfortunatly we didn't get a good call back today. My hcg was only 4 today. My progesterone went up over 34. But it is too late. I just can't seem to keep them. I just can't believe it happened again. I really started to feel better about it all. My spotting had just about completely gone away. I have next to nothing. I just don't get it. why does this keep happening to us. I asked her how long we should wait to try again and she said right away is fine. Since my numbers never seem to get very high there isn't anything for my body to recover from. So now this is our third pg in consectutive months that we've lost, our fourth total. I just can't understand why we can't stay pg. Our problem has always been just getting pg. Now since I had the hsg my tubes are open more and I get pg each month and now I can't hold it.
We have an appointment with the RE on Tuesday afternoon to go over things. I am going to insist on genetic testing to see if that comes up with anything. I think I will also try to push a little more for the IVF. Maybe we just need more embies at once to get a good outcome. i don't know. I just know that I need to hear something good. I need to be told that we will make it thru this and we will have a healthy baby. I was surprised to hear that we should try again right away. But I guess it does make sense that there really wasn't anything there long enough to do anything. I have heard that there are higher chances of getting pg right away following a m/c. maybe that is why I've been able to keep getting pg. If we could only figure out why my body can't just hold it. Once we do that maybe things could be ok. I'm not sure what we are going to do. Maybe this is our fate. I really don't want it to be though. I know I should be grateful I have Riley but all I can think of right now is how we so badly want a brother or sister for him and how we just keep having that dream taken away each time.
Sarah
Bev
August 27th, 2004, 04:10 PM
Sarah, I'm sorry to hear this. :(
Is it something to do with progesterone then? Can you take a supplement right after you O so that if you do conceive it sticks? I'm glad you're going to see the RE. Write down all your questions and take a note pad to take notes too. Good luck. :)
Sarah
August 27th, 2004, 04:52 PM
Thank you Beverly. I am on progesterone. I was on one a day and then my pro was only 13.5 so they doubled it. they want it at least 15. So low but not that low. I am going to do exactly what you said and write all my questions down. I know my mind will be racing when I see him. I will be anxious and nervous for Tuesday to get here.
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